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Funding Through:
UF Clinical and Translational Science Institute
University of Florida – Mt. Sinai Medical Center, 1Florida Alzheimer’s Disease Research Center
Florida Department of Health – Ed and Ethel Moore Alzheimer’s Disease Research Program
Rides and Resources for Rural Residents (R4), Florida Blue Foundation
Catherine W. Striley, PhD, MSW, ACSW, MPE
Hui Hu, PhD
Linda B. Cottler, PhD, MPH
A community engagement program that improves the health of our community by bridging gaps in health care and health research
MISSION
To reduce disparities in healthcare and research
4 AIMS
5,200+ people linked to studies!
Community Health Workers (CHW)
Assess health concerns, conditions and research perceptions of community members
Provide referrals to community members for medical and social services
Provide opportunities to participate in health research, relevant to their health concerns and health conditions
2,055
Enrolled
Navigated
5,201
Contacted
12,721
Informed Consent
10,619
Intake Form Completed
10,233
October 23, 2011 through April 22, 2018
45
Mean Age
African Americans
59%
Food Insecure
47%
Access to Doctors
69%
Introduction/Aim
Results
Discussion
Corbie-Smith G, Moody-Ayers S & Thrasher AD. Closing the circle between minority inclusion in research and health disparities. Arch. Intern. Med. 164, 1362–1364 (2004).
Fisher, J. A. & Kalbaugh, C. A. Challenging Assumptions About Minority Participation in US Clinical Research. Am. J. Public Health 101, 2217–2222 (2011).
Cottler, L. B. et al. Community Needs, Concerns, and Perceptions About Health Research: Findings From the Clinical and Translational Science Award Sentinel Network. Am. J. Public Health 103, 1685–1692 (2013).
Crooke H, Kwiatkowski E, Nelson DR, Cottler LB, Striley CW. Making Research Matter: Consequential Public Health as a Framework for Disparities in Enrollment into Health Research. Journal of Epidemiology and Community Health, under review.
Comparison of Health Concerns and Conditions from Community-recruited participants, and Available, Openly Recruiting Health Research Studies
(sorted in descending order of health concern prevalence)*
*Health Concern percentages calculated out of the number of HealthStreet members who provided at least one health concern as of March 2016 (n=6,724);
Health Condition percentages calculated out of the total HealthStreet member population with completed Health Intake Forms as of March 2016 (n=7,354);
Research Study topic percentages calculated out of all openly recruiting health research studies available to HealthStreet members as of March 2016 (n=90)
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NDI was generated based on block group-level SES Indicators from the 2010-2014 American Community Survey:
74% HealthStreet participants are from areas with high deprivation*
Messer, Lynne C., Barbara A. Laraia, Jay S. Kaufman, Janet Eyster, Claudia Holzman, Jennifer Culhane, Irma Elo, Jessica G. Burke, and Patricia O’campo. "The development of a standardized neighborhood deprivation index." Journal of Urban Health 83, no. 6 (2006): 1041-1062.
* Neighborhoods with NDI higher than the state median (-0.25)
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Cancer (7.8%)
Hypertension (35.0%)
Diabetes (13.2%)
Obesity (38.3%)
Depression (26.8%)
Past Month Use of Prescription Opioids (13.7%)
LaCalle E, Rabin E. Frequent users of emergency departments: the myths, the data, and the policy implications. Annals of emergency medicine. Jul 2010;56(1):42-48.
Vinton DT, Capp R, Rooks SP, Abbott JT, Ginde AA. Frequent users of US emergency departments: characteristics and opportunities for intervention. Emergency medicine journal : EMJ. Jan 28 2014.
Milani S, Crooke H, Cottler LB, Striley CW. Sex differences in frequent ED use among those with multimorbid chronic disease. American Journal of Emergency Medicine. In Press. Oct 2016; http://dx.doi.org/10.1016/j.ajem.2016.07.059
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