Catherine W. Striley, Irvin PeDro Cohen, Hui Hu,
Thomas A. Pearson, Linda B. Cottler
(Completed Informed Consent/Total Contacted Excluding Ineligible)
(Navigated/Completed Health Intakes)
|Unadjusted Enrollment Yield
(Enrolled/Completed Health Intakes)
|Adjusted Enrollment Yield
Effectiveness of the Community Navigation Model
Data last updated: 10/9/2016
$398 per enrollment
Corbie-Smith G, Moody-Ayers S & Thrasher AD. Closing the circle between minority inclusion in research and health disparities. Arch. Intern. Med. 164, 1362–1364 (2004).
Fisher, J. A. & Kalbaugh, C. A. Challenging Assumptions About Minority Participation in US Clinical Research. Am. J. Public Health 101, 2217–2222 (2011).
Cottler, L. B. et al. Community Needs, Concerns, and Perceptions About Health Research: Findings From the Clinical and Translational Science Award Sentinel Network. Am. J. Public Health 103, 1685–1692 (2013).
Crooke H, Kwiatkowski E, Nelson DR, Cottler LB, Striley CW. Making Research Matter: Consequential Public Health as a Framework for Disparities in Enrollment into Health Research. Journal of Epidemiology and Community Health, under review.
Comparison of Health Concerns and Conditions from Community-recruited participants, and Available, Openly Recruiting Health Research Studies
(sorted in descending order of health concern prevalence)*
*Health Concern percentages calculated out of the number of HealthStreet members who provided at least one health concern as of March 2016 (n=6,724);
Health Condition percentages calculated out of the total HealthStreet member population with completed Health Intake Forms as of March 2016 (n=7,354);
Research Study topic percentages calculated out of all openly recruiting health research studies available to HealthStreet members as of March 2016 (n=90)
NDI was generated based on block group-level SES Indicators from the 2010-2014 American Community Survey:
74% HealthStreet participants are from areas with high deprivation*
Messer, Lynne C., Barbara A. Laraia, Jay S. Kaufman, Janet Eyster, Claudia Holzman, Jennifer Culhane, Irma Elo, Jessica G. Burke, and Patricia O’campo. "The development of a standardized neighborhood deprivation index." Journal of Urban Health 83, no. 6 (2006): 1041-1062.
* Neighborhoods with NDI higher than the state median (-0.25)
Past Month Use of Prescription Opioids (13.7%)
LaCalle E, Rabin E. Frequent users of emergency departments: the myths, the data, and the policy implications. Annals of emergency medicine. Jul 2010;56(1):42-48.
Vinton DT, Capp R, Rooks SP, Abbott JT, Ginde AA. Frequent users of US emergency departments: characteristics and opportunities for intervention. Emergency medicine journal : EMJ. Jan 28 2014.
Milani S, Crooke H, Cottler LB, Striley CW. Sex differences in frequent ED use among those with multimorbid chronic disease. American Journal of Emergency Medicine. In Press. Oct 2016; http://dx.doi.org/10.1016/j.ajem.2016.07.059
Rather than a focus on patients who are adherent, we want to participate with people in a process of developing conscientious constituents
Activate as a participant in a solution model
Sixth National Our Community, Our Health: May 2016
Featured Speakers: Charles Casey, Dr. Hendry Ton, Jessica Cruz, Dr. Sergio Gaxiola-Aguilar
Outcome: One of the first OCOH events to be hosted by another CTSA institution
Outcomes that matter
Increased trust in research enterprise
Cost effective enrollments
More voices heard
Person-centered, data-driven, service-oriented