End of Life

(Any age)

Death and Dying

  • Thanatology - the study of death and dying
  • Phases of death:
    • Agonal phase -"struggle" when regular heartbeat is lost
      • Death Rattle- "croak"
    • Clinical death - Brain/heart/breathing stops, but can still be resuscitated
      • Have <20 min, closer to 5-10min
      • low body temperature extends this, some records of 45 min
    • Mortality - Permanent death, person appears shrunken

When is death?

Brain death and vegetative states

Understanding death

Childhood

  • Developing 5 ideas:
    • Permanence
    • Inevitability
    • Cessation
    • Applicability
    • Causation

 

 

  • Understanding death early eases anxiety
  • Culture (religion) affects understanding

Understood early by preschoolers

Understanding Death

Adolescence

  • Gap between logic and reality
    • don't take death personally
    • personal fable
    • risk-taking behavior
  • Improved by talking about death

Adulthood

  • Thought about death increases with age
  • death anxiety
    •  
  • Eased by well developed personal philosophy on death (esp when acted on)

Kübler-Ross’s Stages of Grief & Dying

Do stages of dying even exist?

  • Kübler-Ross’s Stages
    • Denial
    • Anger
    • Bargaining
    • Depression
    • Acceptance
      • Often withdrawn
  • Denial likely after learning of condition and Acceptance likely shortly before death
  • but NOT a fixed sequence
  • Best understood as 5 independant coping strategies

Adaptations to dying

  • Acceptance isn't always best, appropriate death  is one that makes sense to an individual, is free of suffering, and is in ine with personal values.
  • "Good death" according to most patients:
    • Maintained sense of identity
    • Clarifying meaning of one's life/death
    • Maintain/enhance relationships
    • Control over remaining time
    • Making preparations

Adaptations to dying

  • "Good death" affected by
    • Nature of ones disease
    • Personality and coping style
      • Imprisonment or a manate to live more fully?
    • Family and Professionals' behavior
    • Cultural norms
    • Religious practices
  • A place to die
    • Home
    • Hospital
    • Nursing home
    • Hospice  - prioritizes comfort over prolonging life

Euthanasia

  • Passive Euthanasia - withholding treatment
    • Living will
    • Advance medical directive
    • Durable power of attorney for health care
  • Assisted Suicide
    • Oregon’s 1997 Death with Dignity Act
    • Dr. Jack Kevorkian
  • Voluntary Active Euthanasia
    • Dr. Jack Kevorkian
  • Involuntary Active Euthanasia

Bereavement

  • Social Death
  • Bereavement - Experience of losing a loved one. "to be robbed"
  • Grief - physical and psychological distress
  • Mourning - culturally specified expression of bereavement
  • Grieving tasks (Lund 1996)
    • Accept  the loss as real
    • Work through pain of grief
    • Adjust  to new world
    • Develop an inner bond with deseased
  • Dual-process model of coping
    • moving between emotional and life challenges
    • moving between the two offers a distraction
  • Anticipatory grieving
  • Bereavement overloads
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